What is cystic fibrosis?
More than 2.5 million people in the UK carry the faulty gene, around one in 25 of the population.
There is currently no cure for cystic fibrosis but many treatments are available to manage it, including physiotherapy, exercise, medication and nutrition.
Each week five babies are born with cystic fibrosis, and two people die.
More than half of the cystic fibrosis population in the UK will not live past 41, but improved care and treatments mean that a baby born today is expected to live even longer.
The CF charity is something very close to my heart, and raising money and awareness is very important as there are still many people who haven't heard of this terrible disease and the affects it has on so many people's lives each and everyday. Having a brother with this condition, I'm able to experience first hand the affects this horrific condition has and the struggles that is faced on a daily basis.
CF sufferers have to take a MINIMUM of 40 tablets and medication a DAY, just to keep themselves alive and 'well' to a certain extent. To the unknown eye, someone fighting the battle of CF doesn't look unwell - and you often wouldn't realize what that person was facing everyday.
Cystic Fibrosis is a condition which isn't widely known and the urgency for awareness is high. The Cystic Fibrosis Trust is the only UK charity making a daily difference to the lives of people with CF -
"Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with cystic fibrosis and their families.
The research and testing for CF relies heavily on the donation's and fundraising of everyone involved in the UK. With many events, fundraisers and sponsored activities going on weekly throughout the UK the CF charity is growing with the number of people being made aware of the condition increasing everyday. The more people who can help and get involved will have such an amazing impact on the research and moving forward to fight against such a life threatening disease.
I, alongside my family, had the pleasure of being part of the Cystic Fibrosis Charity Ball event which took place late September 2015 in Bristol. It was an amazing night and everyone joined together to donate and raise awareness for such a great cause resulting in an incredible grand total of £12,000 raised for the CF charity.
The black tie event was held at the Aztec hotel and spa in Bristol, who kindly offered a limited discounted price for an overnight stay and breakfast for guests attending the ball. The lady who organised the evening did a fantastic job and the night couldn't have gone any better. On the night was a live auction, raffle and live band who sung the night away.
The starry night ball was a huge success, and I couldn't have felt anymore proud to be part of such a wonderful community.
"Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with cystic fibrosis and their families.
We believe that everyone with cystic fibrosis deserves the best quality of life and real hope for the future, with access to high quality, specialist care.
To achieve our goal we fund research to better understand and treat cystic fibrosis, review standards of cystic fibrosis care, and provide information and advice to the CF community." - CF Trust website.
The research and testing for CF relies heavily on the donation's and fundraising of everyone involved in the UK. With many events, fundraisers and sponsored activities going on weekly throughout the UK the CF charity is growing with the number of people being made aware of the condition increasing everyday. The more people who can help and get involved will have such an amazing impact on the research and moving forward to fight against such a life threatening disease.
I, alongside my family, had the pleasure of being part of the Cystic Fibrosis Charity Ball event which took place late September 2015 in Bristol. It was an amazing night and everyone joined together to donate and raise awareness for such a great cause resulting in an incredible grand total of £12,000 raised for the CF charity.
The black tie event was held at the Aztec hotel and spa in Bristol, who kindly offered a limited discounted price for an overnight stay and breakfast for guests attending the ball. The lady who organised the evening did a fantastic job and the night couldn't have gone any better. On the night was a live auction, raffle and live band who sung the night away.
The starry night ball was a huge success, and I couldn't have felt anymore proud to be part of such a wonderful community.
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| Complementary drinks on arrival. |
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| The amazing set up of the room, inspired by the Starry Night. |
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| Donations made by all - all for such an amazing cause. |
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| Photo credit: photography on the night was taken by the fabulous Studiowise Photography. |
I hope I've given you all a little bit more of an insight into the life of a CF sufferer and all the incredible work that goes into raising awareness and raising money.
As a family we continue to raise funds & awareness for CF and if you would like to show your support & make a donation you can do so on our Just Giving page: https://www.justgiving.com/running4ronnie/
Lets all join together and make CF stand for Cure Found.
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